“If you can’t stand up, stand out.”
The above tagline is from the new show, Push Girls, a reality show that follows the lives of four women who are in wheelchairs. I saw my first episode earlier this week. I am happy to finally see a show which draws attention to the subject of living with a spinal cord injury, however, the show falls far short (in my opinion) of really educating people on what it’s like to live with an SCI. Don’t get me wrong, the four beautiful girls the show follows have their fair share of problems, but the obstacles the producers choose to highlight are more superficial in nature. There’s no mention of autonomic dysreflexia, pneumonia, constant blood pressure and body temperature issues or any of the other uncomfortable complications that are par for the course with a spinal cord injury. Not to mention that all of the women have use of their upper bodies, don’t require 24/7 care taking and for the most part are very independent.
In fact, after watching a few minutes of my first episode, I quickly came to the conclusion that it wouldn’t surprise me if young girls watching the show wanted to also be in a wheelchair because it is “so cool.” Again, it’s extremely important for people to realize that just because you might have a spinal cord injury, it doesn’t mean life is over or that you are no longer able to enjoy things in your life. However, it does mean that your life is now extremely different than it was before the injury. It’s easy to smile and look pretty when the cameras are on, but life continues long after the credits roll and the TV is turned off. And it’s those moments sometimes that could really provide a glimpse into the “reality” of living with an SCI. The good news is at least it still leaves the door open for my idea of “The Quad”, which I’ve written about in the past.
Regarding “The Quad”, it is one of the major initiatives that Getting Back Up hopes to undertake in the future. Recently, the organization had its first board meeting. A lot of discussion was devoted to moving forward with several significant initiatives – all of which will require a lot of planning and financial support, but have the ability to greatly impact the lives of individuals living with an SCI. I would like to thank everyone who has already donated to the public charity. Your generous contributions will be put to use in helping others!
A few days ago I met up with the father of the girl who was brought on stage to sing and dance with Bruce Springsteen at his concert in April. Both of our stories had been featured in the Cleveland Plain Dealer, as well as on numerous blogs around the country. Somehow my Journal entry landed in his e-mail inbox, which prompted him to contact me. Surprisingly, we both live in the same city and were finally able to catch up and enjoy a beer together, talk about our experiences and all things Springsteen. He promised to bring his daughter by one day. Ironically, there is a Springsteen cover band playing at a festival across the street from me this weekend. I wouldn’t be surprised if I see him and his daughter there.
The summer is in full force and I hope everyone is enjoying the great outdoors, BBQ’s and quality time with friends and family. I just wanted to offer my friendly service reminder to everyone to be especially safe around the water. I saw a statistic that there are roughly 6,500 adolescents seen in the emergency room each year because of diving related injuries. Unfortunately, there are no do-overs if you are seriously injured. The best advice I can offer is if there is no diving board, then don’t dive. It’s a lesson I had to learn the hard way, but if it can serve as a reminder to others and prevent future accidents, then let it.
Finally, speaking of my injury, a few people asked me if I have anything planned for next Tuesday, the three-year mark of my injury. I understand the spirit of the question, but certainly don’t need an anniversary to remind me of the event’s significance. I am reminded of it every day of my life. I’m sure I’ll find something to do though.
Your continued support and prayers are greatly appreciated!
Stand Strong!
Scott